The
National Institute of Environmental
Health Sciences and the Department
of Environmental Health at the
University of Cincinnati invite you
to join us in a workshop to identify
issues surrounding reporting back
personal exposure biomonitoring
results to study participants.
Workshop
Program
Is It Safe? Reporting Personal
Exposure Results to Study
Participants When Science is
Uncertain
Julia Brody, PhD, Silent Spring
Institute
Julia Brody, PhD,
is
executive director of Silent Spring
Institute and the principal
investigator of the Cape Cod Breast
Cancer and Environment Study, which
began in 1994. The study tested for
89 endocrine disrupting compounds (EDCs)
in air and dust from 120 homes and
in women’s urine and reported
individual results to participants,
later interviewing them about their
experience in receiving the results.
Brody’s research also focuses on
public engagement in science. Her
work is supported by the National
Institute of Environmental Health
Sciences and National Science
Foundation, among others. She
earned her Ph.D. at the University
of Texas at Austin and her A.B. at
Harvard University.
Successful Use of a
"Community-First" Method of
Reporting Research Results to an
Affected Group
Edward Emmett, MD, MS
University
of Pennsylvania
Edward Emmett, MD, MS
is
Professor and Deputy Director of the
Center of Excellence in
Environmental Toxicology at the
University of Pennsylvania School of
Medicine in Philadelphia. His
research activities include studies
of the role of toxic exposures in
causing disease, including a major
study of PFOA exposure to persons
living in Little Hocking, Ohio.
Measurements of levels of C8 in the
blood and breast milk of the exposed
population have been made, and
reported back to study
participants. Dr. Emmett included
members of the community in planning
the study methods and the
communication of results.
Perspectives from the IRB
UC IRB representatives
Sharing
Unexpected Biomarker Results
Ann Hernick, Community Advocate
Requests for Results, Years after
the End of the Study: The Lead
Cohort Experience
Kim Dietrich, PhD, U.C. Col of
Medicine
Break out groups to discuss:
“We Did…”“We Didn’t…, or We’re
thinking about it ….”
Studies that did and didn’t report
back, rationale and communication
tools used.
Panel response:
Joyce Martin, JD, NIEHS
Everett
(Chip) Lehman, NIOSH
IRB members